My CIDP log of CIDP hitting 80 years-old 2026, the end game: No drugs possible? + Aging with CIDP Progression:

January 2026: I hit aged 80 years old and I am in a quandary with no options available for relief from CIDP progression after minimally 15 years of CIDP. December 15, 2025: Last appointment with my CIDP doctor is depressing. The clinic Nerve Conduction Studies NCS confirm I am worse and talk of me ending in a wheelchair next year 2026 prevails. Still no treatment options (such as Rituximab) as new blood tests are negative for nodal antibodies anti-neurofascin-155 (NF155). I had actually, already in June 2021 been tested for antibodies against Neurofascin-140, NF155, NF186, ONTN1 and CASPRI as well as Immunofixation C Reactive Protein. All were results were negative or not unexpected.

 

This watershed year 2026, I sensibly started my own analysis of my nerve conduction studies and have discovered wide negative differences between what I have concluded from the data versus what I had thought prior to my analysis.

 

Summary Log My CIDP 2026 Big Challenges with No Treatments

CIDP Chronic Inflammatory Demyelinating Polyneuropathy the End-Game at aged 80

 

» February 19, 2026: I hire an an EMG Technologist with 30-years experience and her daughter a whiz-kid data analyst to assist me with my own analysis of the many nerve conduction studies I have had since 2002.

» July 16, 2026: Results of my NCS start coming in. Looks like, subject to confirmation, I was in deterioration free-fall December 13, 2022 when the official hospital report read "nerve conduction studies are stable to better".

» March 30, 2026: I am mortified by my NCS analysis findings. I take action to find new treatment options firstly by trying to contact Argenx directly who launched a new drug VYVGART Hytrulo. As I previously turned allergic to IgG in October 2020. I have assumed that I would also be allergic to the VYVGART Hytrulo but now I am not so sure. I would like to urgently determine whether I would be allergic.

» April 01, 2026: I get a call from the Canadian manager of Argenx operations. I am told Vyvgart SC was approved as a treatment for CIDP November 05, 2025 but is only in the pipeline for funding under OHIP (which is the Provincial medical insurance plan). Vyvgart SC is administered weekly at a cost of $20,000 each jab!

» April 01, 2026: I have told Argencx that I am willing to pay for Vyvgart SC for a defined short period if this will prove I am not allergic. I am hopeful that I will not actually end up paying the whole amount (which I really cannot afford)

» April 16, 2026: I am having a hard time getting any traction on my bid to get a trial of Vyvgart SC even though I was allergic to IgG and my NCS showing a worrisome downward trend. I ask myself Has the Canadian medical system, and CIDP Clinic let me down again?

 

 

Also see:

 

> My Nerve Conduction Study 2026 Analysis

 

> My CIDP log of CIDP versus Eagle Syndrome from July 16, 2024-2025

 

> My CIDP Since Going-Solo without CIDP Drugs February 18, 2021 - July 16, 2024

 

> My CIDP Log after forced to quit IgG infusions October 16, 2020 - January 2021

 

> My summary log and findings on my CIDP infusions of IgG 2011-2020

Concepts for My CIDP log of CIDP hitting 80 years-old 2026, the end game: No drugs possible + Aging and CIDP: old-age, retired, New drugs for CIDP, allergic to IgG in Canada with CIDP and old