My CIDP Panzyga IVIG Log of year-long 2018 Clinical Trial

This January 18, 2018 I have begun participating in the Panzyga 10% IVIG year-long 2018 Clinical Trial that has the objective of determining the effectiveness of Panzyga IVIG for CIDP Chronic Inflammatory Demyelinating Polyneuropathy, as well as determining efficacy of various infusion rates. Panzyga is produced in Europe by Swiss-based company Octapharma AG but is not yet approved for CIDP although shown safe & effective for Primary Immunodeficiency. I had been on a maintenance dose (40 g per four-weeks of Gamunex IVIG) since January 2017 without improvement in my CIDP symptoms and through this Panzyga study would like to now compare a return to the full standard dosage of IVIG (1g per kg body weight per four weeks = 70g IVIG). At the start of 2018 and the Panzyga trial, I judge my state of health at only 30% of optimum (compared to pre-CIDP diagnosis). I especially would like to experience a significant pain reduction with Panzyga (accepting that this is in the realm of a dream). I am also wondering if Panzyga will have less adverse side effects, especially lip-blisters. Having already taken various brands of IVIG for six-years, I have found that adverse effects are less with a lower infusion rate and am used to a max of only 150 ml per hr: This Panzyga study will test a rate of up to 588 ml per hr, a bit scary.

 

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Summary Panzyga IVIG Results Start January 18, 2018
» Trial started January 18, 2018 with blood-work, nerve conduction study and 70 g Panzyga IVIG infusion: Nothing unusual accept that the infusion rate max was 250 ml per hr ( my usual 150 ml per hr rate)
» January 24, 2018- Today had three moderate cramps (left leg, diaphragm, and right arm) all within a few hours

ยป January 29, 2018- Entering the twelth day of te first cycle I have had only minimal lip blisters. But for the 2nd and 3rd infusion cycle I find I have full blown lip scabs

Key concepts for My CIDP log for Panzyga IVIG year-long 2018 Clinical Trial. Panzyga IVIG manufactured by Octapharma, IVIG Infusion rates for CIDP experiment, Compare IVIG brands for CIDP, .